tips
The service lets you retrieve phone numbers, addresses, closing times and other details relating to these categories of services will help you to identify the exact position on municipal maps. Clicking on the headings you can consult the information associated with them.
German Familes Association
Address here: Munich http://www.undinesyndrom.de
E-mail: eva.brandenbusch@t-online.de
UK CCHS Support Group
Address here: 24 Larners Road, Dereham, Norfolk, UK
Phone #. +44 (0)1362 696 509
E-mail: cchssupp@hotmail.com
tips: http://www.cafamily.org.uk/Direct/c60.html
Spain families' association
Address here: Madrid
Phone #. +34965791035
E-mail: https://www.sindromedeondine.es
tips: Antonio Ribes
A.I.S.I.C.C. - Associazione Italiana per la Sindrome da Ipoventilazione Centrale Congenita
Address here: Via Ungheria, 850126 Firenze
Phone #. +39 055 6531900 - fax number. +39 055 6531900
E-mail: aisicc.cchs@virgilio.it
tips: 055 6531900
Centre de Référence du Syndrome d'Ondine
Address here: Hôpital Robert Debré 48 Boulevard Sérurier - 75019 Paris
Phone #. +33 01.40.03.47.51 - fax number. +33 01.40.03.22.09
tips: web site http://www.ondinefrance.org/
