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FAMILIES'ASSOCIATIONS
USA:
CCHS Family Network
http://www.cchsnetwork.org/
FRANCE:
Centre de Référence Français du Sindrome d’Ondine
http://www.ondinefrance.org/
GERMANY:
http://www.undinesyndrom.de/
ITALY:
http://www.sindromediondine.it/it/index.asp
GENETIC LABORATORIES FOR CCHS DIAGNOSIS IN EUROPE
Karolinska University Hospital
Department of Clinical Genetics
Stockholm, Sweden
Magnus Nordenskjold, MD, PhD; Kristina Lagerstedt Robinson, PhD; Helena Malmgren, PhD
Unversitatsklinikum Charite
Berlin, Germany
Prof Stefan Mundlos
Paris: Necker - Saint Vincent de Paul - Institut de Puéri
UNITE FONCTIONNELLE: GENETIQUE MOLECULAIRE Pr Arnold MUNNICH
Genoa G Gaslini Institute, Genetic Laboratory http://www.genmol.unige.it/igg/igg.html;
GENETIC LABORATORIES FOR CCHS DIAGNOSIS IN USA
Ambry Genetics Corp
Aliso Viejo, CA
James Thompson, MD, PhD
Children's Hospital of Philadelphia
Philadelphia, PA
Catherine A Stolle, PhD
Children's Memorial Hospital
Chicago, IL
Lawrence Jennings, MD, PhD; Katrin Carlson Leuer, PhD; Carrie Fitzgerald, PhD
Rush University Medical Center
The Genetics Laboratory/Department of Pathology
Chicago, IL
Elizabeth M Berry-Kravis, MD, PhD; Paul Wong, MD, MSc
