Optimise health care to patients with ICHS in
Europe
Give information about Congenital Central Hypoventilation
Syndrome and the other hydiopathic syndromes with central
hypoventilation
Implementation of a European CHS register (EU-CHS register).
Patients with CHS will be identified in the 14 actually
participating EU countries. Data will be collected through a
secured web-based register
Define European guidelines for diagnosis and treatment of
ICHS
Guarantee a capillary diffusion of information about the
diseases
Provide the state of existing services for CHS in
Europe