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The mission of the European ICHS Network is:



  • Optimise health care to patients with ICHS in Europe

  • Give information about Congenital Central Hypoventilation Syndrome and the other hydiopathic syndromes with central hypoventilation

  • Implementation of a European CHS register (EU-CHS register). Patients with CHS will be identified in the 14 actually participating EU countries. Data will be collected through a secured web-based register

  • Define European guidelines for diagnosis and treatment of ICHS

  • Guarantee a capillary diffusion of information about the diseases

  • Provide the state of existing services for CHS in Europe

update: 07/07/2010

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