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tips

The service lets you retrieve phone numbers, addresses, closing times and other details relating to these categories of services will help you to identify the exact position on municipal maps. Clicking on the headings you can consult the information associated with them.

German Familes Association

Address here: Munich http://www.undinesyndrom.de

E-mail: eva.brandenbusch@t-online.de

UK CCHS Support Group

Address here: 24 Larners Road, Dereham, Norfolk, UK

Phone #.  +44 (0)1362 696 509

E-mail: cchssupp@hotmail.com

tips: http://www.cafamily.org.uk/Direct/c60.html

Spain families' association

Address here: Madrid

Phone #.  +34965791035

E-mail: https://www.sindromedeondine.es

tips: Antonio Ribes

A.I.S.I.C.C. - Associazione Italiana per la Sindrome da Ipoventilazione Centrale Congenita

Address here: Via Ungheria, 850126 Firenze

Phone #.  +39 055 6531900  - fax number. +39 055 6531900

E-mail: aisicc.cchs@virgilio.it

tips: 055 6531900

Centre de Référence du Syndrome d'Ondine

Address here: Hôpital Robert Debré 48 Boulevard Sérurier - 75019 Paris

Phone #.  +33 01.40.03.47.51  - fax number. +33 01.40.03.22.09

tips: web site http://www.ondinefrance.org/

 

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