This website has been created by the European Network for Central Hypoventilation Syndromes : For patients and their families, clinicians, administrative authorities and all interested persons
The mission of the European CHS Network is: Optimise health care to patients with CHS in Europe, Give information about Congenital central hypoventilation syndrome and the other hydiopathic syndromes with central hypoventilation, implementation of a European CHS register (EU-CHS register),as a critical mass of patients is required for high-quality epidemiological and clinical studies. Patients with CHS will be identified in the 11 actually participating EU countries. More partners from more countries will be recruited in order to expand the network towards Eastern Europe and Northern Europe.
Data will be collected through a secured web-based register.
The aims of the project will be:
- Define European guidelines for diagnosis and treatment of CHS
- Guarantee a capillary diffusion of information about the diseases
- Provide The state of existing services for CHS in Europe
- Create a multi-lingual website will facilitate information dissemination and communication
Fourth International CHS Meeting
The European CHS Network announces the organization of the "Fourth International CHS Meeting". "SCIENCE AND LIFE OF CHS. Warsaw, April 13-14-15, 2012
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