This website has been created by the European Network for Central Hypoventilation Syndromes : For patients and their families, clinicians, administrative authorities and all interested persons
The mission of the European CHS Network is: Optimise health care to patients with CHS in Europe, Give information about Congenital central hypoventilation syndrome and the other hydiopathic syndromes with central hypoventilation, implementation of a European CHS register (EU-CHS register),as a critical mass of patients is required for high-quality epidemiological and clinical studies. Patients with CHS will be identified in the 11 actually participating EU countries. More partners from more countries will be recruited in order to expand the network towards Eastern Europe and Northern Europe.
Data will be collected through a secured web-based register.
The aims of the project will be:
- Define European guidelines for diagnosis and treatment of CHS
- Guarantee a capillary diffusion of information about the diseases
- Provide The state of existing services for CHS in Europe
- Create a multi-lingual website will facilitate information dissemination and communication
5th International CCHS Conference: The Future is NOW Priorities, Partnerships, and Patient Voice
The CCHS Network, Children’s Hospital, Los Angeles, Seattle Children’s Hospital, and the European Union Congenital Hypoventilation Syndrome (EUCHS) organization will be hosting the 5th International CCHS Research Conference at the Chase Park Plaza Hotel in St. Louis, MO, June 20 – 23, 2018 (www.chaseparkplaza.com). The focus of this meeting will be developments in CCHS research, advances in clinical management, and progressions in CCHS living
Spanish patients with central hypoventilation syndrome
Spanish patients with central hypoventilation syndrome included in the European
Registry. The 2015 data
Booklet for families Japanese
Here you can find the booklet for families with the Japanese translation
Booklet for Families, Chinese Version
Booklet with information for Families has been translated in Chinese
booklet for Families, German Version
The Booklet with information for Families has been translated in German
Booklet for Familee, Arabic version
The booklet with information for families has been translated in Arabic
Booklet for Families, English Version
This booklet aims to provide patients and carers with basic information on how clinicians diagnose and manage CHS, including its most common form
Congenital Central Hypoventilation Syndrome (CCHS). It also provides information on living with CHS.
The ICHS European Network
Information
Care of the Patient
Other Problems
Abstracts from the Warsaw International Meeting "Science & Life of CHS
Bibliography and Internet Links
Publications and projects
Events
News
English
