CCHS Website
This website has been created by the European Network for Central Hypoventilation Syndromes : For patients and their families, clinicians, administrative authorities and all interested persons The mission of the European CHS Network is: Optimise health care to patients with CHS in Europe, Give information about Congenital central hypoventilation syndrome and the other hydiopathic syndromes with central hypoventilation, implementation of a European CHS register (EU-CHS register),as a critical mass of patients is required for high-quality epidemiological and clinical studies. Patients with CHS will be identified in the 11 actually participating EU countries. More partners from more countries will be recruited in order to expand the network towards Eastern Europe and Northern Europe.
This website has been created  by the Euroean Network for Central Hypoventilation Syndromes : For patients and their families, clinicians, administrative authorities and all interested persons
Data will be collected through a secured web-based register.
The aims of the project will be:
  • Define European guidelines for diagnosis and treatment of CHS
  • Guarantee a capillary diffusion of information about the diseases
  • Provide The state of existing services for CHS in Europe
  • Create a multi-lingual website will facilitate information dissemination and communication
 
 
Spanish patients with central hypoventilation syndrome

Spanish patients with central hypoventilation syndrome

Spanish patients with central hypoventilation syndrome included in the European Registry. The 2015 data
Opuscolo per le Famiglie, versione in italiano

Opuscolo per le Famiglie, versione in italiano

Opuscolo per le Famiglie italiane
Booklet for families. Polish Version

Booklet for families. Polish Version

Booklet Polish Version
Booklet for families, Spain version

Booklet for families, Spain version

booklet for families,
Booklet for families, Russian version

Booklet for families, Russian version

Booklet for families, Russian translation
Booklet for families, Croatian

Booklet for families, Croatian

Booklet for families, Croatian translation
Booklet for families, Slovenian

Booklet for families, Slovenian

Booklet for families, Slovenian translation
Booklet for families Japanese

Booklet for families Japanese

Here you can find the booklet for families with the Japanese translation
Booklet for Families, Portoguese version

Booklet for Families, Portoguese version

Booklet for families hass ben translated in Portoguese
Booklet for Families, Chinese Version

Booklet for Families, Chinese Version

Booklet with information for Families has been translated in Chinese
booklet for Families, German Version

booklet for Families, German Version

The Booklet with information for Families has been translated in German
Booklet for Familee, Arabic version

Booklet for Familee, Arabic version

The booklet with information for families has been translated in Arabic
Booklet for families, French version. LIVRET_D_INFORMATION_EUCHS_v1_avril2012

Booklet for families, French version. LIVRET_D_INFORMATION_EUCHS_v1_avril2012

Booklet for families have been translated in different languages, here you can find the French version
Booklet for Families, English Version

Booklet for Families, English Version

This booklet aims to provide patients and carers with basic information on how clinicians diagnose and manage CHS, including its most common form Congenital Central Hypoventilation Syndrome (CCHS). It also provides information on living with CHS.
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EUROPEAN CHS NETWORK
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